Went to see mom today! She was sitting in the dining room, just finishing up breakfast. She continues to eat about 25% of her meals and taking in her ice cream and med pass drink. As she sat at the table she was looking down. We came in and hugged her. She flinched a bit and didn't really respond to us. She felt cool, so I grabbed her a sweater. We walked her back to her room and sat her in her recliner and placed her oxygen on per nasal cannula. My 5 year old, David immediately sat next to her on the ground and grabbed her hand. I think he was trying to comfort her in case she was scared wearing this oxygen. David has had to have breathing treatments and the large oxygen tank in the form of a small robot buzzing away, must have reminded him of his nebulizer. It does sound just like it. David sat there,not wanting to let go of her, telling her stories about his new kindergarten that we just visited, in which he will start next year. Within 5min. mom perked up and was more responsive. I think the oxygen has really helped her mental state, for what is left!
We did get a new hospice nurse that started today. So far it seems like it will be a good fit!!

Mom's cont. update

Mom is eating about 25% of her meals. She has not had another seizure and her vital signs remain stable except her oxygen saturation(O2 sats). Her O2 sats fell at 81% so oxygen was started. She is a fighter and cont. to hang on! I did get a new nurse from hospice. The one that was taking care of mom wasn't very compassionate or empathetic to me. Being a nurse I expect the nurse taking care of my mom and family to treat us the same as I would treat my patients and their family. If you don't have the compassion as a nurse, especially as a hospice nurse, then this isn't the job for you!